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Hepatitis C – A Disappearing Disease?

  • By Anonymous

    I hear and read a lot about eradication now that there are highly curative treatment options. As a person who is involved in patient support and advocacy I believe that eradication is a noble goal for us all to aspire to. Seek and treat, and treatment as prevention are very important for the people at the highest risk for contracting hep c and transmitting hep c, but that still does not address the other 80% who are not transmitters, as I understand from the data. We need a comprehensive approach to treating all populations affected by HCV, to include at-risk populations, baby boomers, immigrant populations from identified countries with high prevalence rates, and all people living with, or those yet to be diagnosed, and those numbers are often contested, but they are significant. Awareness and education,and access to care, treatment and support.
    Eradication will follow, I hope.

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  • By Susan Simon Moderator

    Hello Daryl. Thank you so much for sharing your thoughts and opinions about the “state” of hepatitis today. While the newer drugs have made great inroads and we are closer to eradicating hep C than ever before, there is still much work to be done. Thank you for your advocacy and patient support.

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  • By hcv30yrsurvivor

    Before you all pat yourselves on the back, declare this disease cured and go home, how about some consideration for the thousands of patients that are failing these new therapies that claim 95% response rates? I am one of the failures. I saw absolutely no viral response to the only therapy my insurance would pay for. This is disease is not over. The new therapies are better(?), but the cost is outrageous – especially when you are encouraged to take the 12 week course when it is clear after 4 weeks that the treatment is a waste of time and money.

    How about work on the treatment failures. Why do 5% of the patients still not show a response? Is it diet, are they naturally resistant to these new drugs, are the clinical trial numbers made up?

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  • By Susan Simon Moderator

    HCV30years. I am so sorry I didn’t notice this post much sooner. Just last month two new drugs were FDA approved for those few treatment failures. These new treatments are curing 95% of those who failed the last treatments to be approved. Please don’t ever give up. I wish you the very best and hope you get to see this.

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