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Hep C treatment

  • By harvoni

    Hi..Recently I was Diagnosed that Hep C. I felt on Sad what’s my next plan I don’t for My Doctor words I Have to Use Ledifasviur and sofosbuvir drug daily Bases..Now I Don’t have Idea What to Do? Also this medication Cost also too Expansive Do u Know anything Please suggest me for the hep Treatment…

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  • By Meaghan Coneys Moderator

    Hi Harvoni,

    Thank you for your post. We are happy you are here and are a part of our community at HepatitisC.net. I can understand your reasons for feeling sad due to your recent diagnosis. You may feel other feelings as time moves on, however know that you are not alone. We are here for you! You may find this article helpful. It discusses the emotional benefits of participating in support groups – https://hepatitisc.net/living/benefits-of-support-groups/, and provides some resources towards the bottom of the article. In addition, this article also provides a list of various Hepatitis C resources, which you may find helpful – https://hepatitisc.net/living-with-hep-c/hep-c-resources/. You specifically asked about treatment options. These links provide more information about treatments you can participate in – https://hepatitisc.net/treatment/, https://hepatitisc.net/treatment/antiviral-therapy/, https://hepatitisc.net/treatment/developments/, https://hepatitisc.net/treatment/drug-resistance/. Furthermore, you may experience various symptoms, and the following article identifies way to manage those symptoms – https://hepatitisc.net/symptoms/managing/. And finally you mentioned the medication cost being too expensive. This article provides assistance in accessing treatments and gives resources for cost effective treatment – https://hepatitisc.net/living/hepatitis-c-linkage-to-care-help-finding-care-accessing-treatment/. Again, thank you for posting your comment. Please keep us updated. We love hearing from you! If you have any additional questions please do not hesitate to reach out. Wishing you all the best.

    Warmly,

    Meaghan (HepatitisC.net Team)

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  • By deedeelee

    Hi, I stopped taking Epclusa two weeks ago. I only took it for 1 month. I still have hep c. I’m very bummed out about it and wonder if there’s any other medication options for me. I haven’t seen my doctor since I quit Epclusa because I’m not happy with her & am seeking a new one.

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    • By Rick Nash Moderator

      @deedeelee I think we’ve all had docs we weren’t happy with, especially in this community. I went through 9 specialists and 8 primary car physicians before i landed with my current orbit of medical professionals. I hope you find a good one, they’re increasingly more competent IMO.

      There are lots of other treatment options, I myself have been on half a dozen different treatments, because sometimes they just wouldn’t take. But in order to know which treatment will work best for you it’s important to know why the Epclusa didn’t work. (You don’t have to tell me, it’s just a medical question for your next doc)

      When a treatment fails, it’s typically because of mutations or an adverse reaction to the medication. I’ve stopped two medications because they didn’t take because of my q80k polymorphism (a resistant part of the virus,) and one because it nearly killed me (but all of these were the old injection treatments.)

      Epclusa has NS5A and NS5B polymerase inhibitors, if you haven’t looked into it, an important test when one treatment has failed, and before beginning another one is the RAV test.
      If you’re looking at new treatments the RAV test can tell you where your virus is resistant, which can tell you how your treatment must be adapted to fit your needs.

      -Rick Nash Six Time Treatment Dragon Slayer and Transplant Recipient

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    • By deedeelee

      Wow! You really know your stuff! Your reply has made me realize I need to know more about this. Doctors haven’t explained anything to me. In fact, it was a fluck that I got treated at all. I saw a gastrologist for a hernia ONE time. At that appt he asked if I would like to be treated for my hep c. I never saw him again. The epclusa put me in withdrawl from my methadone. I was miserable. Couldn’t sleep, agitated, nervous, cold, hot, goosebumps, etc. The methadone clinic couldn’t raise my dose in time. I quit after one and half months of pure nerves & no sleep. I haven’t heard from the doctor since. I’m VERY depressed I couldn’t bite the bullet & hang in there. People tell me I will regret giving up. They don’t seem to understand I TRIED the best I could.

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  • By Rick Nash Moderator

    @deedeelee Shucks, Thank you kindly, I like to think of the fight with Hep C as a battle. And the biggest weapon with any fight is knowledge. I’ve spent years learning and absorbing every aspect I can. Fluke or not, you’ve taken a huge step toward getting cured, even if this treatment wasn’t right or wasn’t at the right time for you.

    You went through an incredibly rough and challenging experience, especially if you went through withdrawls on top of the leap into the unknown of treatment. You did fantastic, and remember that the treatment failed you.

    I suppose it could be said that I “gave up” as well on my third treatment after I nearly died in the hospital. When it comes to treatment, don’t worry about people, people aren’t you. Your journey is your own, it’s good that you know your limits because it’s your life. They’ll be other treatments, and now that you’ve tried this one, you’ll be better prepared for the next one if and when you go for it.

    I understand that depression all too well, when my third treatment failed me, I was inconsolable so I became obsessed with making sure that I was as healthy as possible, and as strong as possible. It helped in multiple ways, it gave me an outlet to channel my depression into something that I could take ownership of and have measurable goals. ( I’m not suggesting you do what I did, but goal orientation and measurable progress can help in management of certain types of depression.)

    The biggest thing though, is empowering yourself by learning more, we have lots of information on this site about Hep C, and anything we don’t have, HCVAdvocate will. There are also webinars put on by the NVHR and the CDC which not only explain about the virus, but usually about things that are going on about prevention and testing.

    It’s also important to remember that treatment reactions varies from person to person, and even more so based on the holistic health (Mind, Body, Soul, and Liver) of the individual. You’re already taking solid steps toward empowering and standing up to the virus.

    -Rick Nash Six Time Treatment Dragon Slayer and Transplant Recipient

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  • By Vijaya

    Alternative medicine are more accepted now a days due to it’s promising results unlike pharmaceutical medicine, alternative medicine don’t give negative effect such as kidney and liver problems when it comes to long term use. As for my alternative medicine usage, I use medical marijuana. Different strain has a variety of uses and effect depending on your needs. Like this marijuana strain http://www.ilovegrowingmarijuana.com/banana-kush/. This strain has a very potent effect on chronic pains like back pain and joint pain and a lot more.

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