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Newly diagnosed

Take a Deep Breath

  • By Susan Simon Moderator

    If you are newly diagnosed consider yourself lucky all around,. You are lucky because now you know and you can take steps to safeguard the health of your liver. Also, it isn’t like the “old days” when interferon was the only treatment. In those days less than 50% of people were cured and the treatment was difficult at best. Today close to 100% of people can be cured in less time, with few side effects. So, if you have to be diagnosed, this is the best time.

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  • By catbordine

    I am newly diagnosed with HVC geno1. I must have had it for years. I am now on treatment. I am praying that I will be cured in 12 weeks. I have Stage3 fibrosis. I am praying that 12 weeks will cure me. Doing research I can see that I have been lucky.There are so many people worse then I am.I go for my first blood draw September 21. I am terrified what the results will be.I am now a local advocate of getting tested.

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    • By CaseyH Moderator

      Hi catbordine, thanks for sharing with us! I’m so sorry to hear about your recent diagnosis, but as Susan pointed out, sometimes receiving a diagnosis leads to successful treatment and more knowledge! I’m so sorry to hear about your fibrosis, however, I’m sending positive thoughts and well wishes your way for a cure in 12 weeks! You have a wonderful attitude about your situation, and are so right that being an advocate is incredibly important. I’m so glad to hear that you are encouraging others to get tested! Nice! Please keep us updated, and we’ll continue to keep you in our thoughts! -Casey, HepatitisC.net Team

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  • By CaseyH Moderator

    Great attitude, Susan Simon! What a great way of looking at the situation! Thank you for posting this! -Casey, HepatitisC.net Team

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  • By Confused65

    I am so scared just found out a few weeks ago I have active hep c virus. I am waiting to go see a specialist. I think I know when I was exposed, did something really stupid. But I have had some of the symptoms for a couple years so I worry I have had it longer? I am just scared and confused.

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    • By CaseyH Moderator

      Hi Confused65,

      I’m so sorry to hear about your recent diagnosis! Please know we’re here for you for anything you need!!! I hope the specialist you see is helpful! Let us know how it goes! In the meantime, I’ve found a few articles you may be interested in on being recently diagnosed:

      Diagnosis of Hepatitis C

      Recently Diagnosed with Hepatitis C

      I hope those provide you with some information! Please let us know how everything is going. It’s okay to be scared and confused, this is totally normal! Just remember, we’re here whenever you need us! -Casey, HepatitisC.net Team

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  • By bradtexas

    Waiting on insurance to start my treatment, lots of pain in joints. I wish I could start today! I have probably had it 30 years but liver looks pretty good even tho I was a drinker.
    Brad

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    • By CaseyH Moderator

      We so hear you, bradtexas! I hope your insurance pulls through soon and that you can start treatment! I’m glad to hear that your liver still looks pretty good! Thanks for sharing! -Casey, HepatitisC.net Team

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  • By helpmebefreeofhepc

    I have had hep for about 10 years now, I just now was able to get into a community health place to just get normal blood testing ect ( no treatment without insurance) & I received a letter saying my labs were abnormal make sure you come on the appointment date..I am so worried I’ve been up all night looking up everything. Just wish me luck or pray for me please 🙏

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    • By CaseyH Moderator

      Thinking of you, helpmebefreeofhepc! Wishing you the absolute best, and hope you’ll keep us posted! Did you go to the appointment since you posted? Hoping things went well if you did!! -Casey, HepatitisC.net Team

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  • By Iskandar

    Hi everyone,

    Just confirmed today that I’m diagnosed with HCV and I’m still in shock. I’m a 40s male with no risky activities. It could be from my knee operation when I was 15 in 1991.

    Earlier on, my mortgage insurance was rejected due to abnormal lipid result & high cholesterol. It didn’t not triggered anything & managed to lower down my cholesterol after one month. Generally I’m healthy and active.

    After that, my GP referred me to the specialist and they found out that I have cirrhosis through the ultrasound.

    Additional blood tests taken afterward and HCV detected. Today, another blood test taken to identify which type of HCV for further treatment.

    Now come another headache whether the treatment is covered under my company insurance or not. The cost almost equivalent to my one year salary 😞

    Only my wife knew this & she took blood test as well today & hopefully she’s ok 🥰

    Thanks.

    Shock Iskandar

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    • By bradtexas

      I had virus 20 plus years and my wife did not have it. Good luck with treatment.
      Brad

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    • By Iskandar

      Great result my wife test is negative. Need to wait till 12/2 to know my HCV type. In my country the common one are Type 1 & 3.

      After that need to look at the options of treatment and the cost. Hopefully it’s covered under my medical insurance as I got cirrhosis already.

      Try my best to be positive and suddenly u feel some pain here and there. Not sure whether it’s due to stress or the desease itself.

      I’m praying to get the treatment soonest possible and best of luck to newly “got to know” people. You’re not alone 💪🏼💪🏼💪🏼

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