One of the areas of HCV research that I have been very disappointed in is the lack of information about what happens if you have been infected 10, 20, 30 years. We have known about this disease long enough to have decent information. The one study everyone quotes was a 20 year study but after 20 years most of the patients were in their 60’s and started to die from other causes. I have been infected for 30 years and have no data to make any sort of decision.
I know my life insurance company thinks I am a high risk because I am paying 3 times what I should pay for my age and health. My health insurance company seems to think there is no reason to treat because I have lived with it for so long without any issues. So which is it? It can’t be both.
I have waited 30 years for an effective treatment. At my last doctor’s visit my doctor told me my numbers were low and I should wait. Wait for what? Right now I am waiting on insurance to decide if they will let me get treatment. They currently only cover the treatment with the highest side effects and I assume the lowest cost for them. It is nice to now that my health is so important to them.