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Hep C and dental issues!

  • By Exactionan96

    Hello, I have undergone three rounds of treatment and still have hep c. I have needed quite a lot of dental work since being diagnosed with hep c. Yesterday I was told I have severe gum disease. My dental crown has become loose and it is about to fall off anytime. I’m 45 years old. I’m planning to undergo an emergency dental treatment from a clinic in Toronto ( http://www.emergency-dental-365.com/procedures/ ). I did a quick web check yesterday and found that there is an association between hep c and dental problems. Can anyone here share some experience or knowledge on this subject? I was also just diagnosed with hep c related osteoarthritis.

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  • By rg01

    The only association between HepC and dental issues that I’m familiar with from experience is the drugs I was given to cure the virus. I was given interferon and ribavirin for 72 weeks ending in June 2010. The virus is undetectable to this day, August 25, 2017 but so are most of my teeth. I now have 12 teeth left. Six top front teeth and 6 front bottom teeth. Prior to treatment, my teeth /oral health would have been described as excellent which my dentist of 30+ years stated in his letter to my insurance company, Aetna Life Insurance Company. Neither Roche nor Aetna want to pay for the damage. Back in late 2009 and 2010 I couldn’t find any information on the internet to confirm what I suspected was the cause for the change in my oral health. Crowns failed, teeth broke and now it’s embarrasssing as hell to open my mouth. Had I known then what I know now, I would have never traded my teeth to rid the virus at that point in time because of the many other newer drugs being developed. I had lived with the virus for almost 40 yrs without any problems so why not wait for another 4 or 5 years and be treated with Harvoni and still have all my teeth and forfeit the hell I went thru for 72 weeks. I’m still pissed. Interferon and ribavirin was the gold standard back then but even to this day, Roche denies their drugs rot teeth. I know there are many other people like me that have had dental issues but not this forum or anyone else will aggressively go after these drug manufactures and insurance companies for NOT stepping up and taking care of those people who have incurred life long damage to their oral health. Since Aetna paid for the interferon and ribavirin I assumed the drugs were safe, but they want nothing to do with paying the cost to restore my teeth. So be very careful before you let anyone talk you into trading your teeth to rid the HepC virus. If anyone knows of an attorney who has persuaded Aetna or Roche to do the right thing, that information would be awesome and greatly appreciated.

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  • By CaseyH Moderator

    Hello Exactionan96 and rg01! Thank you for sharing those experiences with us. I’m so sorry to hear that you’ve had such a struggle with your oral health during and post-hep C treatment. While it may be a messy battle to restore your oral health, I did find a few articles that I thought you may be interested in, and that will show you that you are far from being alone in this battle. You can find these here https://hepatitisc.net/living/tips-for-teeth-care-during-treatment/ https://hepatitisc.net/living/messy-mouth/ https://hepatitisc.net/story/biggest-mistake-life/ https://hepatitisc.net/story/am-i-unusual/ You can also reach out to the authors of some of these stories and articles via the comments or private messages to see how they handled their teeth concerns post-treatment. Please keep us updated on this situation, and I hope others will chime in on how they were able to work towards resolving this!! Best wishes, Casey (HepatitisC.net Team)

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  • By Myofb1

    After being diagnosed with HepC I was positive for 6 years before getting treatment. During these 6 years I had to get all of my teeth removed and until reading your article I never related it to having the virus. Wow. Now my dental situation wasn’t the greatest in the world but for the years up to getting diagnosed I was getting fillings and teeth cleaning and my teeth in general was not to bad. Maybe your on to something here.

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    • By CaseyH Moderator

      Hi Myofb1! Wow, I’m so sorry to hear you had to get all of your teeth removed! Very interesting when put into the context of of HepC. Of course, your doctor or dentist will have the best idea of your dental situation and if it is related to your HepC, but this is very interesting to consider! I’m reposting the links I shared above in case you’d like to read more on this (if you haven’t already!). Please keep us updated on everything! We’re here for you! -Casey, HepatitisC.net Team

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  • By jdh888

    Hi there
    I had the Interferon / Rabivirin treatment from 2005 2006 which made me very ill. I contracted Hep C geno typd 1b via nhs blood transfusions in 1988. Not diagnosed until 2003 even though I had acute hosoitalised jaundice 1991 and the my gall bladder removed 2004 even tho I kept complaint of pain on my right side under rib cage ?? No gall stones lol. Anyway 2005 liver biopsy showed fibrosis level 3 and some portal blockage pre treatment. After the treatment which was hellish my health never really returned fully even tho I was ‘cured many of the side effects remained in particular fatigue and cognigitive problems. Also I was told by my dentist there was a lot of bone loss. My gums where receeding badly and bleeding when touched…..still do. There is not enough bone to have screw in replacements. I know it was the medication that caused it. 12 yrs on…….still feeling under the weather intermittently flu like symptoms and terrible memory loss etc etc. Lost my career home and marriage. It’s great there are better treatments out there that hopefully will not be so destructive.😉

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  • By DaveW.

    I was diagnosed with Hep C in 2009. Over the years before being diagnosed I had many dental problems. About the only symptoms that I suffered with over the years leading up to diagnoses was severe itching all over but mostly on my legs. Looking back now I can see that my body was trying to tell me something was wrong. By the time of diagnoses my liver was already damaged to the point that I was in end stage liver failure. In 2013 I received a living donor liver transplant. My niece was my donor. I was treated for the Hep C in June of 2014 and was cured. In 2016 I applied for free dental work with “Donated Dental Services” and was put on a list. Within 6 months I received a call that they had found a local dentist that was willing to do all my dental work for free! I now have partials and am very grateful. I pray that you will be taken care of as I was. God bless you my friend.

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