Brain fog
Hi! Has anyone found any treatments or strategies to combat brain fog? Also has it gone away or gotten better for you after treatment?
Hi GypsyRock! Thank you for your question, it's a great one! I'm so sorry to hear you're experiencing brain fog, however, please know you're not alone in this aggravation. Many of our community members report this as one of the most common (and frustrating!) experiences they encounter within their HepC battle. While others in the community may be able to share their thoughts and experiences with you, I wanted to share a few articles on brain fog, and some tips on how to combat it. You can find these here,
https://hepatitisc.net/living/brain-fog/
https://hepatitisc.net/living/hepatitis-c-symptoms-brain-fog/
https://hepatitisc.net/living/you-might-be-zoned-out-when/Also, if you look at this article, https://hepatitisc.net/answers/ask-the-expert-symptoms-you-should-share-with-your-doctor/ one of our community experts write that it's a good idea to keep track of your brain fog and report it to your provider if you notice any changes! If you haven't already talked to your provider about this though, it may be a good idea to bring it to their attention! Let us know what they say if you do!
I'm so sorry to hear you're encountering this frustration! Please know we're here for you!!
Best, Casey (HepatitisC.net Team)
I have terrible brain fog, and I went through treatment seven yesrs aago. It is frustrating. I developed chronic illness post treatment. Hopefully, the new treatments are much better. I know they are a lot easier to go through.
The best thing I do for brain fog, is to simply take a break. I lie down witb eyes closed and rest.
Hang in there!Thanks for taking the time to share your experience with us, klk370. I'm so sorry to hear about your lasting brain fog. It sounds like you've found some ways to manage this, but please know we're here for you if you ever need a friend to vent to or to just listen whenever you need. Thank you again for sharing with us, and for sharing your positive and fighting spirit with our community! -Casey, HepatitisC.net Team
Has anyone ever heard of eventually having issues with hallucinations or seizures with HE? I am 35 and literally lost my ability to decipher the difference between real conversations and the ones I later learned weren't even real. It lasted over an hour and was followed my a seizure. I have had Hep C for 8 years and issues with a fatty liver. The occurrences are becoming more frequent and I had never even heard of HE being a possible side effect. I just knew that my brain didn't wait over thirty years to hit some big red psychosis button.. I am honestly very scared. My erratic behavior has cost me loved ones and i just resorted to isolation thinking I lost it. Then last night I started putting all my strange symptoms into my computer, and poof! After two years and multiple episodes I'm worried the brain damage.. that it's to late to get that old me back. I'm struggling... Can anyone please give some tips on how to cope with this mentally please? It has been so... lonely and embarrassing and scary. Even when I don't get the really bad attacks I am depressed in between.. I just want myself back. Thank you for giving me a safe place to share this..
Hi Jenna, thank you for commenting and sharing your situation with us–I want to recognize this takes tremendous courage. We're here with you for support and know that hepatic encephalopathy, is frankly, quite scary. Some of our advocates have written about HE before. Karen has several articles, including this on called "lactulose for my HE", and Jenelle wrote this article cover HE more generally. I would suggest calling Help4Hep, a free peer counseling service for people living with hep C. Their staff is knowledgable and can provide support with accessing treatment and managing symptoms. They can be reached from 9am-9pm EST at 877‑435‑7443. Let us know how you are with an update? Sending you virtual hugs and hoping that things improve for you. Best, Matt (Team Member)
