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Newly diagnosed

Stage 4 diagnosis but normal functioning liver?

  • By Edoherty1

    Hi Everyone! My mom was just diagnosed with stage 4 liver disease. Her doctor explained the damage to her liver in the same way a car, that’s been in an accident and has a smashed up hood and body, can still drive normally. It’s covered in cirrhosis but the liver itself is functioning normally. What’s hard to swallow is that less than 5yrs she had a liver biopsy that just showed signs of fatty liver, in such a short time it’s exceled to a stage 4 diagnosis?! Her doc believes it’s because of an underlying auto immune disorder… The research seems to say that this disease doesn’t deteriorate the liver this quickly, but maybe if the AA discorder is a factor it can? Her treatment so far is a heavy dose of steroids… has anyone else had a similar experience? Thanks so much for any advice/responses!

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  • By Rick Nash Moderator

    @edoherty1

    Every cause of Hepatitis has a different pace, and there are tons of other personal health factors which can play a role.
    Non-Alcoholic Fatty Liver Disease(NAFLD) and it’s harsher form: Non-Alcoholic Stereo-Hepatitis (NASH) aren’t my area of expertise, contrary to my namesake.

    But in my case my liver damaged progressed rapidly over six years. at 22 I had very few symptoms and minimal f1 cirrhosis, at 24, things started to get a little rough and I was assigned a MELD score and by 28 most of my symptoms were incredibly hard to manage, even medically.

    For reference I was born with Hep C.

    I hope your mom is able to get the transplant she needs, if she ends up needing one! Also remember that liver transplantation is one of the few areas where living donors are sometimes possible.

    -Rick Nash (Six Time Treatment Dragon Slayer and Transplant Recipient )

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  • By Ilovedylan

    This is my first post/question. I was diagnosed with Hep C in 2001. Over the years, I’ve done 3 treatments. Two of them with interferon and last was olysio(which cured my virus). I was diagnosed with Stage 4 cirrhosis in 2013. I haven’t had a drink since then. My Dr says my liver is functioning normally, but I have swollen spleen, portal hypertension, low platelets, and so on…. The question I need answered, if at all possible, is about rectal bleeding. It happens 2 or 3 times a week. Does anyone else have this issue and what causes it? Thanks in advance for your feedback.

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  • By Randy Moderator

    Hi Ilovedylan and thanks for posting. Rectal bleeding can be caused by a number of things such as hemorrhoids, fissures, abdominal varices, colon issues etc. What has your liver specialist (or gastroenterologist) said about this? Have you had a colonoscopy recently? I’m thankful you’re cured and liver numbers are good. It does sound like you’re uncomfortable. What is your doc doing about the portal hypertension? I’m sorry I don’t have more to add but I definitely think you deserve to get answers my friend. I’m also cirrhotic; we do run into special issues huh? A thorough assessment by a specialist seems in order. I’m hopeful that there’s an easy answer such as hemorrhoids. Please talk to your doc ok? And please stay connected for support and to let us know how you make out. I also hope someone who has experienced the same will jump in here. With much care, Randy, Community Moderator

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