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Karma or Ignorance

I am 28 years old. I was recently diagnosed with HCV just 3 months ago. I have not been able to get into a doctors care or see a physician yet because I do not have insurance or money. I guess you could consider me poor. I was not lazy and neither was I a drug addict and still am not. I have had my ups and downs and experiments with drugs and unfortunately one of my curious nights have landed me with having this disease. I have been couch bound for what feels like a lifetime. I have always held a job down always supported myself up until about five months ago when I noticed extreme changes in my daily functions. One to be my energy levels. I was the first one of anyone to want to jump up and go on an adventure now it is extremely exhausting just to wash dishes or take my step daughter to the park. I’ve notice loss of attention, forgetfulness, and extreme depression. All these things I noticed before being diagnosed. I ended up losing my job for too many call outs because of fatigue. I then turned to other ways to make quick cash. There was a plasma bank in town so I took a visit and found out from blood work they do that I have hep c. I have no idea what direction to go in. My step dad was diagnosed with hep c three years ago and he has yet to receive any kind of treatment. It almost feels hopeless even though there is a cure now it seems out of reach for people like me. My credit is horrible I don’t qualify for any government help because I’m considered young and healthy but am I? I suffer from depression and anxiety prior to my diagnoses and have never taken anything for it due to my financial situation. I just feel like I have no choice but to sit and wait for these years and days to go by until the day comes that I just don’t make it to see another sunrise or sunset. I have been doing what I can to try and keep my hep c in control despite the way I feel. I take milk thistle daily and other vitamins and also use apple cider vinegar and other home remedy to ease the tole of having hep c. I have pain in my liver not a constant one but it comes and goes. Some nights I fall right to sleep from exhaustion from other nights of staying up tossing and turning trying to get comfortable and trying to keep my mind from racing. It’s been a rough five months now. And only three of them knowing I have hep c and not knowing how long Ive had it is scary.

Is it just now peaking because its getting worse? Is my liver giving in to the disease? Why am I all of a sudden having symptoms and some of them being violently apparent that they are there and they are real. Why am I going through all of these symptoms now when anything that could have lead to this was years ago in my past early 20s and late teens????

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Comments

  • EllerMay66
    2 years ago

    I’m so so sorry your having to go through this. your story is my story. I got fired from my union job of 13 yrs. lost everything. spent up my retirement money tryi g to make it through. went to plasma bank to .make cash and was told I had hep c. it’s was horrible!!! it took me 2 yrs. and begging my liver Dr. to write letters for me . me switching my MEDICAID provider to “MERIDIAN” writing emails to them and my senator to get treatment. get on Medicaid, and make an appt w liver specialist.fyi my first liver Dr I saw was a joke and did nothing to help me.ha
    d to search out the Dr I have now…wich is beyond wonderful a
    nd wonderful hep c clinic that helped me and fought for me to get treatment. you must not just sit back and be sad or you will not make it. I know how hard it is. I fight depression and anxiety also. but you have got to fight every day to get to that cure. you can make it happen…but you must put in the work as hard as it is to do so being sick!!!!!!!! my heart and prayers are w you sweet girl. you can do this!!!!! I’m 51 and waiting on SSDI now went to trial before judge awaiting decision. took 4 yrs!!!!! apply now and get a lawyer that specializes in disability. prayers to you. ❤

  • Kelly McNamara moderator
    2 years ago

    Hi Alicia,

    Due to our community rules in order to protect your safety and privacy, I edited out your email: https://hepatitisc.net/community-rules/. This community and site is focused on hep C so unfortunately we don’t have very much info about hepatitis B. We’re so sorry to hear everything you’re going through though. We recommend talk to your healthcare team or reaching out for a second opinion.

    Warmly,

    Kelly, HepatitisC.net Team Member

  • CaseyH moderator
    2 years ago

    Hi Shorty2789!

    Thank you for taking the time to share your story with us. I’m so sorry you have had to endure so much, and are still fighting a daily battle with HepC and treatment options. Please know we’re here for you, and grateful to have you in our community! I found a couple articles surrounding fatigue and depression that you may connect with, since you mentioned them in your amazing piece, https://hepatitisc.net/living/hepatits-c-and-fatigue/ and https://hepatitisc.net/living/depression-still-again/

    We’re so glad you’ve found our community, and hope it can become a welcoming and encouraging environment to get you through your upcoming days. I found a few additional articles on paying for treatment, since you mentioned being denied disability. You can find these here, https://hepatitisc.net/living/paying-for-hepatitis-c-treatment/ and https://hepatitisc.net/living/paying-for-treatment/ I sincerely hope you are able to connect with these, and find a few helpful tips.

    Please continue to keep us posted, and know we’re here for you. Even if it’s just when you need a compassionate and friendly ear to listen!

    Best,

    Casey (HepatitisC.net Team)

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