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Remembering Barry Edge

It is with great sadness that we share the passing of former advocate Barry Edge. Barry passed away on January 24th 2019, surrounded by his loving family. We are thinking of his loved ones during this difficult time. Barry will be remembered, and missed, by all who knew him.

Barry Edge

A dedicated advocate

One of’s earliest advocates, Barry committed his life to serving others, through roles as an intake counselor for a substance abuse program, former Vice President of the Hepatitis C Association, and passionate advocate for the greater hepatitis C community. Throughout his battle with hepatitis C, and especially following his liver transplant in 2014, Barry was committed to sharing his experience with others, and offering his knowledge and support to fellow patients.

We are honored to have known Barry. His kindness, passion, and supportive attitude will be remembered by the entire hepatitis C community, as well as the advocates and team members of

Join us in remembering Barry

We know that Barry’s writing, advocacy efforts, and kindness touched so many in the hep C community. If you would like to share any memories or stories about Barry, please comment below.

Barry’s family asks that in lieu of flowers, donations be made to The Clyde F. Barker Penn Transplant House in Barry’s name. More information can be found here.

Rest in peace, Barry. Our community will miss you deeply.

Click here to read Barry’s articles on
Click here to learn more about Barry.


  • Kimberly Morgan Bossley moderator
    3 months ago

    I was saddened to hear of Barry’s passing. I never got the honor of meeting him in person however, was blessed in following him online. He was a great support for those fighting hep c. His work touched hundreds if not thousands of lives. He will be missed dearly. May his fight live on through all of us here. My thoughts and prayers are with Barry’s family and friends. Rest in peace my friend.
    “Not without a FIGHT!~HCV~”(C)
    Kimberly Morgan Bossley- Moderator

  • Karen Hoyt moderator
    3 months ago

    What a beautiful tribute to a great man. Thank you for giving us this opportunity to share our hearts.
    Barry and I met right here at almost 4 years ago exactly. My first post was in February, and I was curious to see who else would be sharing their experience. Barry was right there, offering his unique perspective and experience.
    His determination to share what he had learned in order to help others is the standout memory that I have of him. He didn’t waste a problem, but instead used it to try and make it easier for all of us to understand.
    He had a lot of insight into areas of Hepatitis C that few do. I could go on, but it’s with tears that I say farewell to this great comrade in arms.
    Rest in Peace Barry. Your battle is finally won. Much love to your loved ones during this time of loss. We will miss you. xo Karen

  • Juliana Swaren moderator
    3 months ago

    I never had the privilege of meeting Barry, but have learned from everyone that he was a kind and wonderful man. He was so committed and passionate in his work with the greater hepatitis C community, and we are so fortunate that he was a part of team. My deepest condolences to Barry’s family- may he rest in peace. ~Juliana, Team

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