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Remembering Barry Edge

It is with great sadness that we share the passing of former advocate Barry Edge. Barry passed away on January 24th 2019, surrounded by his loving family. We are thinking of his loved ones during this difficult time. Barry will be remembered, and missed, by all who knew him.

Barry Edge

A dedicated advocate

One of’s earliest advocates, Barry committed his life to serving others, through roles as an intake counselor for a substance abuse program, former Vice President of the Hepatitis C Association, and passionate advocate for the greater hepatitis C community. Throughout his battle with hepatitis C, and especially following his liver transplant in 2014, Barry was committed to sharing his experience with others, and offering his knowledge and support to fellow patients.

We are honored to have known Barry. His kindness, passion, and supportive attitude will be remembered by the entire hepatitis C community, as well as the advocates and team members of

Join us in remembering Barry

We know that Barry’s writing, advocacy efforts, and kindness touched so many in the hep C community. If you would like to share any memories or stories about Barry, please comment below.

Barry’s family asks that in lieu of flowers, donations be made to The Clyde F. Barker Penn Transplant House in Barry’s name. More information can be found here.

Rest in peace, Barry. Our community will miss you deeply.

Click here to read Barry’s articles on
Click here to learn more about Barry.


  • AdRetired
    4 months ago

    Condolences to Barry’s family and friends.

    I met Barry in 2005 when I joined the Hep C forums as a volunteer. Back then forums were not like they are today. Doctors used to tell patients to stay away from forums. Barry became sort of, like my mentor and research partner. He taught me never to approach something with my mind already made up because I would miss much and something he said helped me with the research I just finished, “A gene is like a switch, it’s either on or off”.

    Thanks Barry, for all you taught me. This one goes for you.

    (From Barry’s blog)

    “Sunday, July 03, 2005 11:56:19 AM:

    An Answer To Silvia

    I got a post in the guestbook about how I just abandoned the subject of interferon resistance and nonresponse. I keep forgetting that I’ve never taken the time to put all of this in one place. I mean, I’ve talked about nonresponse a lot, and some possible reasons, but it’s scattered all over my blog in fragments. So this is for Silvia and thank you Silvia, for taking time to write a thoughtful post in the guestbook.”

    “So Silvia, sorry about that. In the juvenile detention millieu, I was what they called “incorrigible,” although I seriously doubt that there is an antonym to that. I’ve never heard anyone say, “Wow, he is extremely corrigible.”

    I hope that I have shown some repentance in avoiding HCV altogether, and I also hope Silvia and I will be friends for a long time. And while I’m on this subject, I’d like to thank all of my newbies and regulars for staying in touch with me, even when I wasn’t all that keen on being stayed in touch with. All of you inspire me to keep doing what I’m doing, but I kept getting emails like “Hey Miles, what are you doing? Why aren’t you blogging?” Thanks so much to all of you for your encouragement and patience with me. I know I’m a hard case – I don’t mean to be, it’s just that sometimes, I don’t see the point in what I’m doing, even though I love what I’m doing. But I had so much evidence for high dosing at my fingertips, and it didn’t work for me, so all I can say is, “Hey, when do I start treatment again?”

    So, please forgive me for straying off the subject for so long. It wasn’t until Silvia’s post and several dozen emails that I felt comfortable about posting about HCV again. I plan on keeping it up.

    Okay, that’s enough outta me tonight. Thanks to all of you for reading, and special thanks to Silvia for reminding me what I’m doing here. “

  • Kimberly Morgan Bossley moderator
    10 months ago

    I was saddened to hear of Barry’s passing. I never got the honor of meeting him in person however, was blessed in following him online. He was a great support for those fighting hep c. His work touched hundreds if not thousands of lives. He will be missed dearly. May his fight live on through all of us here. My thoughts and prayers are with Barry’s family and friends. Rest in peace my friend.
    “Not without a FIGHT!~HCV~”(C)
    Kimberly Morgan Bossley- Moderator

  • AdRetired
    4 months ago

    Back in 2005 Barry wrote a very popular blog that got hundreds of hits daily and lots of people emailed him.

  • Karen Hoyt moderator
    10 months ago

    What a beautiful tribute to a great man. Thank you for giving us this opportunity to share our hearts.
    Barry and I met right here at almost 4 years ago exactly. My first post was in February, and I was curious to see who else would be sharing their experience. Barry was right there, offering his unique perspective and experience.
    His determination to share what he had learned in order to help others is the standout memory that I have of him. He didn’t waste a problem, but instead used it to try and make it easier for all of us to understand.
    He had a lot of insight into areas of Hepatitis C that few do. I could go on, but it’s with tears that I say farewell to this great comrade in arms.
    Rest in Peace Barry. Your battle is finally won. Much love to your loved ones during this time of loss. We will miss you. xo Karen

  • Juliana Swaren moderator
    10 months ago

    I never had the privilege of meeting Barry, but have learned from everyone that he was a kind and wonderful man. He was so committed and passionate in his work with the greater hepatitis C community, and we are so fortunate that he was a part of team. My deepest condolences to Barry’s family- may he rest in peace. ~Juliana, Team

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