| HepatitisC.net

Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

lorwal

Member

"Hi Karen, thank you n yes I can't wait to heal from this. I hear the the person who's the food expert, I plan on checking out your blog. I'm trying to eat healthy but it's so hard. As far as alcohol goes, I know it's not good but if I have a meaning( one) drink maybe once a week I hope its not harming my chances of getting better. It's hard to change your whole life style. I've been eating healthier and drinking lots of water."
"Hi Car in,"
1. lorwal
  Hi Carin, I found out while getting a physical for work, they requested the test, thank God. I had no symptoms and never would have known. So far the only side effects I'm having are headaches
"Thank you Rick for the information. So far today is day 5 on the Mavyret and my the only side effect I'm noticing is headaches. I'm going for a Colonoscopy tomorrow and I'm trying to drink that stuff , it tastes horrible. Now that I'm on the medication my mind feels a bit at was. On other sites I see people posting numbers from test results. I'm clueless when it comes to that. I wrote down questions to ask the Dr tomorrow . I'm trying to learn what I can to help me get better. I'm learning about liver healthy foods. Thank you again for responding, it's comforting to know I'm not alone."
1. rick-nash
  @lorwal Congrats on your first week of treatment! In my experience the first two weeks often feel the hardest.)
  Excellent about the questions! Have you seen the https://hepatitisc.net/living/20-questions-for-your-doctor-about-treatment/ page? It's just a good catch-all in case you forget something. I know my brain fog had me forgetting important questions often!
  
  I recently had a colonoscopy myself, that liquid not only tastes weird, it just feels weird going down, not to mention the bathroom breaks.
  
  The numbers can be daunting, but there are a few key things to know: ALT/ALP/ALK-Phos are showing how well your liver is functioning. If they're outside of normal range, it means the liver is working overtime. The viral load doesn't tell you how well you're doing, just the active number of viruses in your system. So it's a relative scale number, meaning it is mostly useful when looking at it compared to how it was before treatment, and eventually afterward. Viral load can also indicate the potential velocity of the virus (how quickly and at what rate it could move.)
  If you're looking into a liver friendly diet I think @karen-hoyt has to be our resident liver foodie, if you haven't already check out her food blogs or her book.
  
  Anytime! We're always here, it's always nice to have the shelter of peers when things get uncertain.
  
  -Rick Nash Six Time Treatment Dragon Slayer and Transplant Recipient
2. lorwal
  Hi Rick
  I'm glad the colonoscopy is done! I asked some questions and got some answers. He said I have the most common hep c 1a, my ALT-72, AST-59, ALK PHOS-107. He also said I have no cirrhosis or ascites and endoscopy was good no varies. I can't find the viral load # on the lab sheets so idk about that. I def will check out Karen's food blog. Those #s aren't too bad are they? Thank you for all your help.
3. Karen Hoyt
  Hi Rick and Lorwal - Your numbers are a little above the upper limits. When Hep C virus is growing, that happens. Your liver gets inflammation. Congratulations on NO cirrhosis. That means when you are cured - your liver calms down quick! and can heal!!
"I recently got diagnosed with hep c. Im waiting for my insurance to give the ok on getting the medication Mavyret. My joints hurt and I now have a red rash on my face. I'm feeling so many emotions. This is a terrifying disease. Has anyone been on this medication? "
1. rick-nash
  @lorwal
  Initial Diagnoses is one of the roughest emotional periods with Hep C, so seeking help and answers like you're doing, you're already dealing with the hardships in a healthy fashion. The emotional waves will ebb and flow, and as the liver disease advances it can mess with your emotions too. The disease can definitely be terrifying, I know I've had my share of scary moments over the years, and the fatigue can worsen joint pain, but if it gets unmanageable, a doc may have something which can help, so it's always good to keep them on the level.
  
  I haven't been on Mavyret, one of my friends with Hep C has, and I've been on a few other DAAs (Sovaldi/Zepatier/Harvoni) the side effects can vary from person to person, but by and large there is increased light sensitivity, headaches, and she complained of more fatigue than she'd had previous. It's efficacy, like the other DAAs is very high. Do you have any questions/concerns about taking the medication?
  
  -Rick Nash Six Time Treatment Dragon Slayer and Transplant Recipient

lorwal's Status Updates