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Looking Back at the Beginning of My Fight

Early-on in my diagnosis of hep C, I noticed some symptoms I was having. These symptoms, I learned later, were all normal and common ones for those fighting hep C.

Fatigue was the main symptom I was experiencing- I was so tired all of the time. I also noticed my coordination with opening up jars or containers was off. It was like I didn’t have the strength to open them.

Consumed by brain fog

I really noticed that something was amiss was when I would answer my company phone and forget what to say. It was as though a mental block was stamped in my brain. As my hep C progressed, the more and more incidents would happen, and I began to fear answering the shop phone because I didn’t want to sound strange. To deal with it, I hired someone to do that part of business and greet customers as they came in with work. I started limiting my time exposed to the public.

After hiring someone, I was left to sit at my computer doing all the quoting, invoicing, etc, but then that became an issue. I could not do simple math problems, such as adding a few numbers together. It was crazy. It was then that I was scared enough to reach back out to my doctor for help. That is when we learned that my liver had progressed from a stage 1 to a stage 4. This meant my liver was struggling badly, and all the symptoms like brain fog, muscle pain, and joint pain were because my liver was not performing its duties of filtering out the toxins of my body.

Then versus now

This all happened early-on in the hep C era. Not much information was out there discussing these topics, so I blew off my symptoms. If I had known sooner, I probably could have sought help sooner.

Nowadays, there are so many amazing treatments curing at very good odds of 98% or better. Therefore, there is no reason anyone should put off treating, if you can. Yes, we have heard the insurance issues, etc.  But, be proactive. Get involved in fighting for your treatment! If one door closes, you knock on the next.  You keep going. “No, I am sorry” was never in my vocabulary, and if I ever heard this, I would beat on the next opportunity, and finally, after several denials, I got my cure.

Today, my symptoms are still there, but in a mild form (Not because of Hep C, as I am cured, but because the damage hep C did to my liver, and it still being cirrhotic). I take medication for brain fog, and my muscle and joint pain is getting better since I began to workout more. However, I still have a hard time telling others how I feel or what is hurting (usually because I pushed myself too far and now it is beyond extreme pain that there is no starting point to describe to them).

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The HepatitisC.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • jdh888
    6 months ago

    Hello I live in the UK
    My main thing 15 years post Interferon/Rabivirin treatment is poor health. Similar to pre treatment all the classic problems fatigue confusion aching joints under the ribs swollen belly some yellow of eyes itchy skin areas red hands etc. I have Cognugitive problems too. After my treatment 2004_2006 I was found unfit for work and struck off the register as an RN.
    My life was ruined
    GPs just brush over my health issues and after years and years of trying to get recognition iv given up and try my best to get by on benefits. I lost my career husband and home. My young daughter was my only support through everything and was deprived of her child hood.
    It’s time some real research was in operation about the long term damage of these drugs

  • shaheu
    5 months ago

    The tremendous pain in my legs is nearly unbearable. They become ice cold and I can’t walk on them.
    All my docs say it’s from depression and panic attacks so they don’t treat it.
    I also am an RN, just took a leave today. I’m so sorry you had to give up all together

  • Kimberly Morgan Bossley moderator author
    5 months ago

    I am so sorry to hear of your complications. I too have last effects such as pheripheral neuropathy now. I still take pain medication for the nerve pain daily. I too feel that life is no longer what it was either however, I look at it this way, I am ALIVE, I get to be there for my kids and enjoy each moment with them. I have actually started working out (slow) in the gym I noticed within 6 months my pain medication was now only a quarter of what I was taking. I have gained strength back and I do more puzzles and mind training so to speak to get my thoughts and brain to stay alive. I too wish more was being done about interferon and the lasting effects but in mean time, do not allow your mind to go negative. We feel all that we put into our minds. Stay positive and grateful for being alive. Many blessing to you. Keep that chin up
    Not without a FIGHT! ~HCV~(c)

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