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  • How to Participate Anonymously

    Are you afraid to talk about your hepatitis C? Some people want to learn more about hep C, but also want to keep their diagnosis private. At HepatitisC.net, there are ways to get information and connect with others, without revealing your identity.

    Click here to learn more about how to talk about hep C anonymously.

    Migraine…

    My mom died because of a brain tumor. At first, she is experiencing severe headache from time to time. We went to a doctor to ask whats happening to her but they said its only a migraine, so he gave a medicine to cure the pain. She was bedridden at that time. 1 month later when were busy on something i heard my mom shout because of her head and that point we ran to the nearest hospital but sadly her journey is over. Yes, she died when that thing happens to her. We don’t know if who’s fault is that because the doctor in that hospital told us she has a brain tumor and all this time we only know that its a simple migraine. It’s been 11 years now but i still remember what happened to her. I am experiencing migraine now and i am afraid maybe one of these days it can happen to me also. But i read this article https://www.greenmed.io/blog/the-best-weed-strains-for-pain/ that maybe marijuana can cure a migraine, i don’t know if this thing works so i want an opinion here. If somebody uses it already? Can you help me with th
    is?

    weight loss and gain

    I had hepc for 6 years. I lost a tremendous amount of weight 100 lbs. I was treated with Harvoni and now I’m gaining the weight back. Has anyone else experienced this?please if you have respond to this post.

    Age 65 Medicare

    Hi Gang,

    Retired at 62 and receive SSI, 2018 will be auto enrolled in Medicare A & B. At this time have private insurance with my last job. They are offering the option for retired employees an insurance plan that cover 20% of what Medicare Part B doesn’t and Prescription coverage with the same co-pay as my private insurance did. The cost is roughly $166 a month less the cost of Medicare Part B which is roughly $100 a month. So the total for insurance when I reach 65 would be $266 a month. The deductible is $3,500.
    *
    Need some direction on what I should do. Cleared HCV in 2005 but have a preexisting condition. Type 1 Diabetes.

    Just started vosevi

    Just wondering when should i get bloodwork done to check if this drug is working been over 2 weeks since istarted? Dont have doctors appt till jan22. I failed viekirapak it was undetected for 2 months then it came back. My fibroscan is f2. Is anyone else on vosevi? Thanks alot chis.

    Self recovery

    I had no idea that there even was such a thing, but apparently there is and I’m one of the really lucky ones.
    I did something I rarely do today. I answered my phone and it was the Veterans Affairs Department calling to tell me that hepatitis C was no longer detectable in my system. That just about blew me off my feet. I’ve been living with this disease now for well over 20 years and even as recently as last year it seemed to be getting the better of me. Four months ago my gut was swelling way out of proportion. I was convinced I wasn’t long for this world so I scheduled appointments and had blood drawn several times and each time I was told that my viral load was getting better. Today I was informed that the virus is no longer detectable. The swelling is gone as well.
    I guess this is what happens when you eat radioactive spiders.. The person from the VA hepatology department are at a loss to explain it as well so they had been drawing blood regularly.
    The only thing in my life I’m doing different is that about 4 months ago I stopped eating meat and dairy products instead choosing a vegan diet.. I guess radioactive spiders are part of the diet and I was never told..
    Strange things happen..

    Hep C treatment

    Hi..Recently I was Diagnosed that Hep C. I felt on Sad what’s my next plan I don’t for My Doctor words I Have to Use Ledifasviur and sofosbuvir drug daily Bases..Now I Don’t have Idea What to Do? Also this medication Cost also too Expansive Do u Know anything Please suggest me for the hep Treatment…

    Beginning Treatment Today, Many Questions

    Today I am waiting on my front porch forthe UPS to deliver my first round of Harvoni. I have many questions, When is the best time to take it? How do I integrate my other medications like Thyroid meds? What have YOU found to to make this regimen easiest? What foods are best to eat, when do you take your meds?

    Thank you,

    So grateful for to hear you experiences
    Lori

    New to Forums-

    Hi! I’m new to the forums and thought I’d introduce myself as well as ask a couple questions all in one post 🙂

    I’m a 36 year old Single Mom and I was diagnosed with Hep C in 2013. My genotype is 2b but I admittedly know little as to what that means in regards to symptoms, treatments and prognosis.

    I live in Philadelphia, PA which is home to a few nationally renowned hospitals—one of which specializes in Hep C treatment—Jefferson University Hospital. I have my first appointment on May 1, 2018 to discuss my treatment options.

    I was diagnosed by my GP who also tested for my genotype and routine liver functioning/viral loads etc. When I was first diagnosed in ‘13, my labs did not indicate I needed immediate treatment and I was told newer, more “successful” treatments would be FDA approved so I might be better off waiting until then…..and so I waited and waited. More like spent years in denial while secretly hoping this “reminder of my past” would miraculously go away on its own. Now, 5 years later I’m ready to take the steps to rid my body of this virus, hopefully once and for all.

    I have a history of mental illness, specifically an Eating Disorder and PTSD which left me unable to work and I’m currently on SSI/SSDI. I mention this because my depression (also dx bipolar but who knows?) has been VERY difficult to treat, especially when compounded by Complex PTSD. I take some medications that are for off labeled use in order to treat my depression which lately has become resistant to those medications as well.

    (My GP has also diagnosed me with Fibromyalgia and Chronic Fatigue Syndrome but I am not sold on either diagnosis, especially the former.)

    I have many new physical symptoms that have alarmed my (new) doctors as they do not know of my Hep C diagnosis. The GP who diagnosed me with HepC says these symptoms could be due to an autoimmune disorder, as the others are suggesting or they could be the result of my Hep C.

    This recent increase in symptomology is one major reason I am seeking treatment now. (To either arrest these symptoms or know for sure that something else is likely going on). The 2nd reason is because I am planning on finishing my masters degree in Spring 2019 and the application process needs to be completed in the next couple months.

    I had to drop out of my graduate studies when I unknowingly dated & married a Narcissistic Sociopath who is now my ex husband. After years of mental, physical, sexual & emotional abuse as well as other torturous things he put me through, I was again diagnosed with PTSD.
    only recently have I felt well enough to continue my graduate school studies which will hopefully lead to a fulfilling career in Social Work (w/an emphasis in Domestic Violence Treatment) as Id graduate with an MSW + a state certification in DV…..and a career that will also financially support both me and my young daughter.

    I have read a lot of conflicting information regarding Hep C treatment so id greatly appreciate anyone who can answer these whether anecdotally or with research QUESTIONS:

    – What Treatments are available, specifically for Genotype 2B?
    – Any Significant Side Effects?
    – Average Length of Tx?
    – Any medications used to help alleviate these side effects?

    – does it seem feasible for me to complete Hep C treatment in time to start graduate school in January of 2019 and/or can I undergo treatment while taking advanced degree coursework?

    – Depression? Fatigue? Issues??

    Thanks in advance for taking the time to read my post and for any advice and/or information you provide…

    Current & Recent Meds:
    – Adderall IR 60mgs (30mg x2 day)
    – Lyrica 150mgs (I take off and on)
    – Prozac 60mgs (recently stopped taking)
    – Klonopin 4mgs or Valium 20 mgs per day
    – Antipsychotic meds to augment SSRI (recently stopped taking)
    – Lithium 300-600mgs (stopped taking 2 months ago)
    – Ambien- 15mgs at night (PRN)

    Newly DX

    Have a Hx of dealing with chronic active hepC thru a parent but never dreamed that this would be my reality……. got positive blood test back early Jan was referred to an Endocrinologist who repeated the test and confirmed I was positive get Hep C. After a bout with the flu and bronchitis I was able to go and have more blood work done along with an ultrasound this past Monday, we’ll Tiesday they called and said that I have to much iron in my blood and the dr wanted me to have more blood work to determine if I also have hemochromatosis so now I’m just awaiting the findings of the lab and ultrasound but the nurse did say the dr said my ultrasound looked ok but I’m just terrified, been reading up on the effects of the iron overload and the success rate of being to for help C which isn’t good. I’m going thru this alone and I’m feeling very overwhelmed and trying to remain positive and Hopeful

    Harvoni

    Today I found out my insurance is covering Harvoni completely for the 12 weeks my dr wants me to take it. I should be getting my first 28 days of pills early this upcoming week so with that in mind I should start them by the end of next week. I know medicine effects people differently but I’m anxious trying to decide what time would be best for me to take it. I work full time at a fast pace job (assembly line) and work 2nd shift and have bouts of not sleeping very good quite regularly so I’m concerned I won’t have the physical energy to work and I also fear of having insomnia. Any suggestions or insight I appreciate and thank you!

    Insurance

    Today I found out that my Dr wants me to do Harvoni for 12 weeks but that depends on whether or not my insurance company will approve it. Was told if they deny coverage of Harvoni then they will switch it to another drug. My question is what are the disqualifying reasons for getting tx such as Harvoni? I have Blue Cross Bkue Shield insurance. This is all new to me and I have no support system in my life because I don’t feel as though I can share this diagnosis with anyone. I’m just not ready to open up about it yet.

    Stage 4 diagnosis but normal functioning liver?

    Hi Everyone! My mom was just diagnosed with stage 4 liver disease. Her doctor explained the damage to her liver in the same way a car, that’s been in an accident and has a smashed up hood and body, can still drive normally. It’s covered in cirrhosis but the liver itself is functioning normally. What’s hard to swallow is that less than 5yrs she had a liver biopsy that just showed signs of fatty liver, in such a short time it’s exceled to a stage 4 diagnosis?! Her doc believes it’s because of an underlying auto immune disorder… The research seems to say that this disease doesn’t deteriorate the liver this quickly, but maybe if the AA discorder is a factor it can? Her treatment so far is a heavy dose of steroids… has anyone else had a similar experience? Thanks so much for any advice/responses!

    Spotlight: Living with Invisible Symptoms

    So many symptoms of hep C whether emotional or physical are not visible on the outside. Let us know what it is like to live with an invisible symptoms. How do you describe what you’re going through to friends and family?

    Take a Deep Breath

    If you are newly diagnosed consider yourself lucky all around,. You are lucky because now you know and you can take steps to safeguard the health of your liver. Also, it isn’t like the “old days” when interferon was the only treatment. In those days less than 50% of people were cured and the treatment was difficult at best. Today close to 100% of people can be cured in less time, with few side effects. So, if you have to be diagnosed, this is the best time.

    Brain fog

    Hi! Has anyone found any treatments or strategies to combat brain fog? Also has it gone away or gotten better for you after treatment?

Viewing 20 topics - 1 through 20 (of 60 total)