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Hepatitis C Symptoms

weight loss and gain

  • By Myofb1

    I had hepc for 6 years. I lost a tremendous amount of weight 100 lbs. I was treated with Harvoni and now I’m gaining the weight back. Has anyone else experienced this?please if you have respond to this post.

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  • By Meaghan Coneys Moderator

    Hi Myofb1,

    Thanks for your post! We are so happy you are a member of our community. Sorry to hear you lost so much weight due to your diagnosis, however congrats on receiving treatment and gaining the weight back! The following article discusses the symptoms related to Hepatitis C, and lists weight loss as one of the various symptoms – https://hepatitisc.net/symptoms/. Also, we always suggest speaking with your doctor when it comes to medical questions as they will be able to provide the most comprehensive answer to your question. Perhaps he or she will be able to inform you as to why you are gaining the weight back. Again, thanks for your post! Please continue to keep us posted on your progress. We love hearing from you. Wishing you a lovely day.

    Warmly,

    Meaghan (HepatitisC.net Team)

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  • By Myofb1

    Damned that was helpful

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  • By Myofb1

    The moderater says thanks for me gaining a 100lbs back??My question was if anyone experienced this weight loss when they were sick with HepC and then gaining the weight back after being cured using Harvoni.

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    • By alberthill

      Serious concern over siblings wt. .loss post harvoni. Apparently screws with your dna at the rNA level and metabolism does change within first year and can barely keep wt.. on. Therapeutic responses from this forum is to be expected. Self educate w/ Drs., pharmacists, medication inserts and look up words you might not be familiar with to make inteligent inquiries to research hospitals, pharmacies. Helpapparently is not here. Al

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  • By Ruthfether

    Glad you are doing well, with Harvoni treatment then cure. You only had Hep. C for 6 months…and received treatment…what stage were you in? I have had it for 30 years or so. You can read a personal story I wrote in the Living With Hep. C . section, entitled,”Living with Hepatitis C for 30 years…by ruthfether. I have yet to receive treatment but am working towards it. I just have one more procedure to undergo first.

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  • By Myofb1

    Reply to ruthfether. I had chronic hepc for 6 years not 6 months.For the whole time I was infected I didn’t have any symptoms other than extreme weight loss. And really no appetite. I wasn’t sick at my stomach or anything but I just didn’t have a desire to eat. This was after I loss the weight. But this past year I was treated with Harvoni and I am cured.
    Now the weight has come back with out really changing my diet.Also during this time I’ve been in addiction recovery and my health is so much better. My doctor said it could be the combination of being cured and being clean and sober causing the weight gain.

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    • By sheilad

      I’m so happy for you , I’ve lost Weight too. I’m newly diagnosed with Hep C and Diabetes. Can’t wait to get approved for HARVONI and get my weight back.

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  • By Myofb1

    Harvoni is amazing!

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  • By ahahn1109

    Yes!!!! My husband has had it maybe 2 years now and he is literally skin and bones he started off when we met 8 years ago at 170 now weighs 116lbs. He turned yellow and went to hospital and found out he hepc and stopped drinking immediately hes been great actually but suffering alot over this extreme weight loss. We cant afford treatment how were you able to go through treatment if u dont mind me asking.

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    • By AudeSapere

      Many people are buying the treatment legally from Australia for 20K..We in Ireland who cannot work because of some medical reason are getting the treatment for free on the healthcare system. So i am on disability from a fall so i got it for free..God Bless those who cnt afford it

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    • By Myofb1

      I am a military veteran and the VA is treating all veterans with Harvoni if you want treatment at no cost to the veteran. Is your husband a vet? If so I highly recommend him going to the closest VA Hospital and talk to them about getting treatment.

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  • By Myofb1

    I am a military veteran and get all my health care needs at the VA Hospital. They offered free treatment to any veteran with hepc with Harvoni. So naturally I said hell yes. 2 months later I was cured. Harvoni has a 98% cure rate and I only had to take one pill a day for 8 weeks. Harvoni is expensive but some insurances cover it. There is also other new drugs out now that is not expensive. You need to talk with your doctor about what options you have etc. Good luck!!

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  • By AudeSapere

    Hey,
    I had hep C for about 7 yrs. I done the HARVONI last year, one tab a day for only 8-weeks. I had type 1A. I have put on a lot of weight, i was so thin.The doc said after about 2 years my metabolism would get back to normal and i would not have to worry about the weight gain..Good Luck!!

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  • By bradtexas

    I gained weight and can’t lose it. I completely changed my ways. I eat very healthy, walk 7 to 8 miles a day and ride my bike alot. I have like 18 or 19 more days on Vosevi. I failed on 8 weeks of Harvoni. Harvoni has like 98% cure rate if you do 12 weeks they don’t mention cure rate at 8 weeks. I am clear of Hep C a 2nd time I hope I can lose my extra lbs when my meds run out.

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    • By DieselPupp

      I gained weight too.. Diet and exercise didn’t work, I didn’t stop gaining weight until after I finished Epclusa and the hepc was gone. It’s been a few months now, I’m not gaining weight but I’m not loosing it either. I’m hoping the weight will go away, at least some of it

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  • By bradtexas

    I am not gaining but my energy levels are way higher. I kinda slowed down on the exercise because its been raining for like 2 months. Today was the first time I have seen the sun in forever. Time to get back to it.

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  • By sheilad

    That’s great my insurance will cover it. I’m waiting on the final paper. My co pay will be $30

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  • By sheilad

    How much weight did you gain and how long after stating your treatment. Trying to gain some weight back too.

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    • By Myofb1

      I gained like 80 pounds . But while I was active with Hep C that is how much I lost. So basically I’m back to where I was before getting HepC.

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  • By bradtexas

    I went thru treatment 2 times, gained like 20 lbs. I have lost it now.

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  • By Thankful1

    Has anyone been cured with Harvoni? I just started Harvoni 15 days ago. I have a headache most of the time and diarrhea every morning. I have to take it for 12 weeks. Don’t know if I can manage that long if these side effects don’t let up. Any advice, anyone? Thanks 😊 in

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    • By bradtexas

      I did Harvoni and failed but that was because my insurance only approved me for 8 weeks. I was cured on Vosevi in 12 on my 2nd try. I would try and eat very healthy. I ate zero fast food and no greasy crap food. Quitting really isn’t an option the sides are better than not being cured. I would ask your doctor about it tho.

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    • By Susan Simon Moderator

      Thankful, You must be almost done with treatment. I hope you will come back and let us know how you are doing. Did the side effects let up a bit? Let us hear from you. (Sue, Community Moderator)

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  • By Myofb1

    My weight gain after taking Harvoni has finally leveled out. I’m
    Up to225 lbs. But have remained at this weight for over a year now.
    Cured and Happy!

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  • By Swason24

    I just started Eplusa today. I am 6’5” and weigh 160 pounds. I weighed 205 3 years ago. I never have an appetite. I’ve complained to my doctors for years and they tell me to “choke it down”. After coming across this thread I now have great hope that this weight issue will be resolved. I can’t remember the last time I was hungry. How long after starting the treatment did your appetite come back? Thanks You all have made my day!

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