Living with hep c / cirrhosis and then passing away with cancer

In September of 2019, my boyfriend comes home from where he worked at the saw mill and his legs were swelled beyond belief . He proceeded to take a shower and could barely see his feet and his knees the swelling was so bad. I go in and I start researching the symptoms he has while he promises to go to the ER later that nite.  Well, he doesn’t go.

Finally to the ER

My boyfriend waits for a few days, thinking it was just nothing, but every symptom he had lead right back to hep c cirrhosis. I also knew these symptoms because my brother had hep c. Finally he goes to the hospital and they don’t find anything! I ask the doctor who had a hep c cirrhosis test done and a liver test yet so he hadn’t but he does and he sends us home. The the doctor calls 20 minutes after us getting home tells us to return to the ER it’s very important, turns out my boyfriend has to get blood and they tell him it is hep c with cirrhosis.

Back to the hospital

We go to a big hospital and get the hep c cure and they do many tests and other things. They do detect cirrhosis in some places on his liver but they say it’s nothing so we believe them.  In 2023 he seems to be getting sick and has to have blood every other week but they couldn’t tell us why. They didn’t know! He does this up until 2024 when some ER docs tell him he needs to go have some test done and he does and it turns out he has cancer and a clot in the liver. He was told in late June, early July he has cancer and in August... well... he passes away.

A great loss

I watched a strong man just wither away from this diease and I have been devastated by it. My brother also died of this but my boyfriend really suffered. He had places on his body that would clear up only for them to come back worse. Also brain fog kicked in and made him like Dr Jeckel and Mr Hyde. Swelling hernias that they couldn’t do anything for because he was so weak. I blame the doctors! He was going to them and they couldn’t figure it out. I wonder in my mind sometimes if they knew and he was their guinea pig or maybe they didn’t and just weren’t the kind of doctors they said they were.

Those last few months of his life he spent in a hospital room getting fluid drained from him and I’m not talking small amounts either. All I think of is what he said to me one evening. "I wish I could get better." All I could do was just look at him and the hospice nurse had told me he may have 3 days left. I was ready for this but he wasn’t ready, unfortunately. We thought he would pull through it.

Somehow it’s been 14 months since he passed away and everyday is a struggle for me. I miss him more everyday and I hope one day they really find a cure for this. I have more to say about all the things that his body went through, who knows, I may write a book about it. The liver is nothing to ignore if u have symptoms or think they could be symptoms get to the doctor to catch this in time, don’t wait!