My Experience with Hep C

In 1992, I was diagnosed with ovarian cancer. I was 42. During treatment the blood work showed I was positive for hep C. The gastroenterologist I was send to see was a jerk, and made me feel ashamed, that I must have done something bad or hung out with bad people. (I have no idea how I got it, but I did have some small tattoos done when I was a teen, in the 60’s.) Needless to say I never went back, nor did I seek treatment. I admit I kept drinking wine, not daily but still….. In 2005, that changed and by then I had cirrhosis. My life had gone off track, I made dumb decisions, and I became a homeless person. Some one cared enough to get me to see a Dr. At the time I had no insurance, and was told about how I could get free interferon and ribavirin. from the manufacturers. A free clinic kept it for me in their fridge, they gave me the shots, and I found a woman’s shelter to stay at for the year. We did think it was gone, blood test looked good until treatment was done, it came roaring back worse than before. I gave up, I got so depressed, no need to be here any longer’ that was my out look, here I was, single and spayed, feeling “dirty” all over again, I was suicidal. Some how with help from good people I managed to get benefits, a small room, and started to climb out of the depression. It took another 12 years to seek treatment again.

On Sept. In 2017, I started on Harvoni, by now cirrhosis was in 4th stage. Treatment for the half year was not bad, lost a lot of hair, that was painful as it was waist length and I had to cut it off. No other symptoms, I was done with it on Feb 15, 2018. I felt blessed until the Gastro guy left for a new practice elsewhere, and I feel left in limbo. I do have a different Gastro Dr. just got the blood test results in the mail, and no Hep C detected!! AST and ALT are still high, all else is good. No new date has been set up for test or bloodwork to get done, makes it somewhat scary. I have never told this to anyone, there were no ears for it by friends or family. I feel sad today, and lonely, I do not know why, it might be the “after” feeling of the Harvoni treatment, I came here looking for an answer, I gave you my story instead.

I feel better now I told my secret to the whole world, thanks for listening. Carin

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The HepatitisC.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

View Comments (9)
  • itsme
    6 months ago

    Hi Carin, how are you doing now since your treatment has stopped?

    I hope you’re feeling better. I have quite a friends who have gone there Harvoni Treatment and seem to be doing well.

    I haven’t gone thru treatment yet, but plan to in a couple of months.

    I pray you’re doing better and have found good people in your life. I feel having a good support from friends and family is a blessing and helps with healing tremendously.

    Hope to hear from you. Blessings
    ❤️❤️❤️

  • carin author
    6 months ago

    Hello , thank you for getting back to me, yes it has been a while, it was rough going for a bit , just had to reset the body and mind, I have taken lots of vitamins,the D’s and B’s, extra folic acid, been doing much better lately, energy is better, depression is better , or I should say I can manage it better? Either way it is all good .
    AST 24, ALT 18, HCV not detected . I am trilled about it . Liver is functioning well.!! next test in Nov . actually looking forward to it. I feel confident the virus is gone for good.
    Hope you are getting treatment soon, it is worth it, even though I did not think so right after ….
    No ill effects from the Harvoni, gained a few pounds, I needed it. Wishing you the best , sending healing thoughts your way.

  • Lauren Tucker moderator
    6 months ago

    itsme, thanks for supporting other community members with your kinds posts! We are glad to have you here. Best, Lauren (HepatitisC.net Team)

  • carin author
    6 months ago

    Hello Lauren, thank you for your kind words, it took me a while to turn things around ,but all is well now.
    Liver is doing great …. Best to all.

  • Lorwal
    11 months ago

    Hi Carin,
    Sounds like you’ve been through hell. Im newly diagnosed with hep c and am on day 5 of Mavyret. I also have kept it a secret. The more I read about this horrible disease the scader I get. I’m happy for you, it may have taken years but you made it.

  • carin author
    11 months ago

    Hello Lorwal, glad you are being treated as a newly diagnosed person , it is the best way, find out, get meds, and get it over with.
    Had not heard of mavyret , new meds are coming out all the time now.. How are you feeling on it and how did you find out you had hep c? I am curious about that, wondering if you had symptoms.
    Today, for me it is going super, I am my old/new self ,even have a waist again, 🙂 …still waiting to get the last blood test done, but it feels like I kicked it .Been working on getting lots of minerals in me, and cleansing the liver, I feel good.
    Hoping you feel the same way soon , let me know he’?

  • CaseyH moderator
    1 year ago

    Hi Carin,

    My goodness friend, what a journey you have had. I’m so sorry to hear about all you have had to endure, including the homelessness, unsympathetic doctors, and your struggle with previous treatments. You are truly a fighter. We’re so glad you’ve found our community, and took the time to open up like you have. We so appreciate your story, and you, in our community. Despite all the hardships, I’m SO happy to hear that you successfully treated this time around!!! That is AMAZING! We’re so happy for you! I understand your conflicting feelings now post-treatment. I’m hoping others can chime in if they experienced these feelings too, and how they coped with them. I think joining a support group, whether in-person or online like our community, is a great place to start. Our members, moderators, and contributors have felt many of these same complex emotions, and have had similar stories to share. I have no doubt that you will find comfort and support here. Please continue to share with us, we’re so glad to have you here. Wishing you the best, and sending hugs your way! -Casey, HepatitisC.net Team

  • carin author
    12 months ago

    Thank you Casey ,good to hear from you, I needed hugs today, it has been a rough coupe of weeks , head aches have started to bug me and the sleepless nights are here, the walks feel like I am walking in deep mud, heavy feet, this was supposed to happen while on the harvoni, and it did not. It has been 1 1/2 months since treatment stopped, hope this ends soon… can’t wait to get checked out , I called for a consultation, have not heard back from the Dr. at all , makes me feel left out and abandoned ,at the same time I feel guilty about moaning about it. I am glad you are company on this road.

  • itsme
    6 months ago

    Hi Carin, how are you doing now since your treatment has stopped?

    I hope you’re feeling better. I have quite a friends who have gone there Harvoni Treatment and seem to be doing well.

    I haven’t gone thru treatment yet, but plan to in a couple of months.

    I pray you’re doing better and have found good people in your life. I feel having a good support from friends and family is a blessing and helps with healing tremendously.

    Hope to hear from you. Blessings
    ❤️❤️❤️

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