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Too cure or not to cure

That is the question……..

I sit here at midnight (can’t sleep) pondering the life decision fate has dealt me. Recently diagnosed with genotype 3 chronic hepatitis c and compensating end stage cirrhosis. The doctor is insisting I do treatment on his word and little info and worry about other issues later. I am 51 and ok with dying, I have had the best life.

The points I wonder and realize there are no answers are:

With viral load of 17 million, can HepC be killed without making liver weaker structurally…… Hmm

Will the magic cure repair
The years of ringing in my ears
My lost memories..(literally can’t remember my or my son’s childhood, and I was single father)
The constant pain of liver and something in spleen area
The callous looking bumps taking over neck and face
The vomiting several times daily and urinating every hour
The brain fog, dizzy spells and the blackouts..
But mostly just the feeling like crap 24 hours a day

I am just pondering and not looking for any medical advice. I started showing symptoms 5 years ago wasn’t found till August 2016. I live in mountain cabin with low money, no insurance, and disability has denied me twice..Once for not being blind and other says “we realize you have cirrhosis, but we feel you can put in a 40 hour week.”

A large hospital wants to help, but I don’t feel wasting the pills as beneficial.

Has this wonder cure help others alleviate their symptoms? Or is the damage done?..Do I break my streak? (To my memory and medical history I have) I have never taken a prescription or had operation.

In closing, I have very tolerable existence right now and no regrets, So I’m not scared of dying and would rather die than live 5-10-20 years, feeling like I do now…..Is that wrong?….That is the real question.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The HepatitisC.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • Gypsy
    1 year ago

    I was diagnosed almost 12 years ago .I got to the point I was bedridden for 6 months and felt much like you. I am genotype 3a. I was able to get generics as I did not have insurance and living off social security. I was treated for 4 months. I felt alive after 4 months and each month felt better. I belong to several groups that support hep C, those going through it. Without these groups I was a lone dove in the wilderness. Nobody else understood. Good news is it worked. Before I had brain fog where I could not carry on a conversation or remember from one second to the next. Treatment will change how you feel.

  • jackrabbit006 author
    2 years ago

    Thanks glowbug… Have never been told my fibro score, just that I have compensating cirosis by multiple gastroenterologist.. Sadly treatmentfor hepC still out of reach. Hopefully gonna find a route. But I’m enjoying going from near death to having few years and I’m not giving up yet….

  • Glowbug
    2 years ago

    Glad to hear you are feeling better, so are you going to go ahead with treatment? Did you get a fibrosis score? I am at 3, 4 being cirrhosis and am told it will just get worse if I don’t get treated

  • CaseyH moderator
    2 years ago

    Hi jackrabbit006. Thank you for sharing your thoughts with us. This is certainly a difficult decision to ponder. Although it’s ultimately your choice, please know we’re here for you. Even if you just want a friend to talk to about something completely unrelated to ease your mind. Whatever you need. Hopefully, others in the community can chime in on how they feel or their experiences, but for now, please know we’re thinking about you, and sending positive thoughts your way! Please keep us updated! -Casey, HepatitisC.net Team

  • CaseyH moderator
    2 years ago

    Oh my goodness, jackrabbit006!!!! What a story!!!!!! That’s crazy! Thank you for sharing with us! Please keep us posted! We’re thinking of you and sending positive wishes your way! Glad to hear many of your symptoms are gone, and that you are enjoying our site! We’re so grateful to have you hear! -Casey, HepatitisC.net Team

  • jackrabbit006 author
    2 years ago

    Meant HAVE NOT vomited once…..

  • jackrabbit006 author
    2 years ago

    Thank you Casey…….I’m about to post a shocker story. Misdiagnosed for the last year. Yes I have HepC and beginning cirosis, but was rushed to Hospital dying on June 26. A gastroenterologist that wasn’t my doctor kidnapped me and did an EGD finally. 3 gastroenterologist that I went to as appts never did one…He found eroded esophagus, hiatle hernia, 5 ulcers, and blocked intestines and colon. He gave me protonic and upgraded from end stage cirosis to stage 1 cirosis. I’m glad to say I have vomited once in 22 days and 3/4 of my symptoms are gone ( even got memory back).

    Morale: ask questions, get trustworthy doctor, and don’t ever give up…

    I’m 90% symptom free…. Thanks to this great site for educating me…GOD BLESS MY FRIENDS INVOLVED WITH HEPITITISC.NET….

  • Gypsy
    1 year ago

    Wow! That is awesoe. That is a lot to go through but glad you are feeling so much better.

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