A & B & C

My story starts back in the 70’s daze. We all are aware of the ways to contract our virus. Been there done that, yes all of them. Not boasting in anyway just stating the facts. I was diagnosed with Hep A-B-C sometime back in the early 80’s. I can still remember the sickness, the aches and pains, jaundice, etc, etc. After needing assistance to dress myself because I couldn’t even raise my arms I went to the Doctors. I was told if I was to quit drinking and using, the liver was the only organ that can repair itself. I just assumed, yes there is the word, (assumed) all would be well. After a short stay in jail and a longer stay in rehab I quit drinking and using. Amen.

Jump to present day, blood work revealed high liver enzymes which led to more tests. Diagnosed with fatty liver which led to……. you got it more tests. Viral load, I think that’s the term, very high. Diagnosed with Hep C. The A & B cleared up I guess, but not the C. I am currently one point away from cirrhosis according to my latest blood work. I was prescribed Harvoni, but my insurance company denied it. My GI is currently appealing the decision, we will see. Have good days as well as bad, unfortunately the bad are becoming more frequent. Not complaining or whining, did it to myself. Appetite is next to nothing, mornings seem to be the worst. Once I am up and going, it’s cool. Problem is getting up and going. LOL. I just want to thank everyone for listening to my ramblings. Peace. ✌️

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The HepatitisC.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

View Comments (15)
  • Tomtom author
    2 years ago

    Update! After​ 6 crazy months I was finally approved for Viekira Pak with Ribavirin!!! Began treatment yesterday. No noticeable side effects. But it’s only day two. Just wanted to thank everyone for listening to my ramblings for the last 6 months. I will keep you all posted as my battle continues. ✌️

  • CaseyH moderator
    2 years ago

    Hi Tomtom!

    YAY! So glad to hear this!! Wishing you well during your treatment (and beyond, always!). Please keep us posted and know we’re here for you!

    Best,

    Casey (HepatitisC.net Team)

  • Tomtom author
    2 years ago

    Good morning all. Hope everyone is well. Latest development in my ongoing battles with insurance company. I had to go for a urine test yesterday, mandatory requirement from insurance company. SMH. ✌️

  • Tomtom author
    2 years ago

    Happy Friday all. And yet another denial from Caremark Pharmacy!!!! Unfreakin believable!!!!!!!! Once again appeal being sent right back……… I am getting to the point of just asking,what the Hell will you cover. SMH Have a good weekend all.

  • CaseyH moderator
    2 years ago

    Thanks for sharing, Tomtom! Keep us posted! -Casey, HepatitisC.net Team

  • Tomtom author
    2 years ago

    Good morning all. Hope all is well. Had my liver biopsy yesterday. First and last! The procedure was somewhat uncomfortable for sure,but not intolerable. Recovery room was a different story. Was doing alright for 10-15 min then boom. BP dropped to 60 over 30! Talk about being scared, especially when 6 people came in. Bag of fluid and 1 hr later I was cool. Now we wait again for the results. Thanks all and ✌️

  • CaseyH moderator
    2 years ago

    Hi Tomtom! I have been following your story, and am so glad you have continued to share with us. We are so grateful to have you in our community!

    That sounds like a scary experience for sure! I’m so sorry you went through all of that. Glad to hear you are feeling better, and wishing you the best of luck with your results. Please keep us posted!

    Best, Casey, HepatitisC.net Team

  • Tomtom author
    2 years ago

    The saga with BC&BS of South Carolina continues. Ultrasound this morning,liver biopsy scheduled for next week. No approval unless it shows liver damage. Beginning stages of cirrohsis in previous tests. Oh wait, let’s wait until the situation is worse. SMH. Hope everyone is doing well. ✌️

  • Kathy D
    2 years ago

    Yeah, it’s the same in Arkansas with BC/BS. Liver Biopsy needs to show F-3 or F-4. Be happy you now are sober regarding alcohol. Here, they demand a blood alcohol test or no V-Pak w/Ribavirin. You must be a Geno 1A if Riba was added to the mix. Are you?
    It’s amazing how slow this disease can progress and then wham! fire up and go out of control.
    Folks forget the cost of the tests and visits.
    I’ll be watching this story and waiting to read what your biopsy results were. Not wishing for F-3 but financially it may be good.

  • Tomtom author
    2 years ago

    Hello all hope everyone is well. Not here to complain or looking for sympathy just want others to know what’s happening in my story. A long one at that! LOL.. Latest development,BS&BS of SC will cover the Viekira Pak but not the ribavirin! SMH. My GI said we will discuss other options @ my next appointment. 1/25/17. Not really sure what or why the ribavirin has to go along with the Pak,but will find out shortly. I keep you all updated on my story not to discourage anyone by no means. Attention needs to be brought to others about the hassle trying to get well. ✌️

  • Tomtom author
    2 years ago

    Happy New Year to everyone! Hope y’all are doing well. Received another denial from BS&BS,this time for Viekira Pak w ribavirin! Yes I found the correct spelling. LOL.This is what their stating. Prescription is not covered if the F3-F4 fibrosis score was not confirmed by liver biopsy or ultrasound elastography and the patient does not have cirrhosis. I maybe incorrect which happens frequently I must say. LOL. But am I reading this right? Wait until the Hep C infects your liver to cirrhosis stage and then try again…… Thank you all for reading my banter. GI will appeal and we wait once again.I was diagnosed back in November 2016!!!! I can understand why people lose hope and give up. But I am one stubborn SOB. Insurance Company Nightmare

  • Tomtom author
    2 years ago

    Hello everyone,hope all had a Merry Christmas. Latest development on my saga. BS& BS denied my Drs second appeal. They are now going to prescribe Vierra Pak,think that’s how it is spelled. LOL. Now waiting on a phone call from Speciality Pharmacy,I think she said. That was Dec 6th! No phone call yet. These insurance companies,what a racket man.

  • Kathy D
    2 years ago

    Happy New Year, Tomtom!!! While you were waiting Insurance companies were getting ready for 2017.
    Viekira Pak (Viekira XR) has a wonderful success rate with mild sides. Specialty Pharmacy can ship to most local Pharmacies. Perhaps you have a Walgreens near by?
    Say, I’m tagging this so answer back. We all want to hear about what’s happening.
    HepBird1 aka Kathy D.

  • Meagan Heidelberg moderator
    2 years ago

    Hi Tomtom,
    Thank you so much for sharing your story with us and our community. I definitely agree with despondent@62 and speak with your insurance program. Here are some resources that we hope you find helpful also; https://hepatitisc.net/living-with-hep-c/hep-c-resources/.

    We are glad that you are a part of our community. Please always feel free to vent anytime! We, as well as our community, support you!

    Best – Meagan, HepatitisC.net Team Member

  • despondent@62
    2 years ago

    Tomtom,
    My BlueCross insurance denied me twice through Express Scripts for Viekira Pak. I was then offered the 12week program at no cost after showing Abbvie that my income was less than $99,000.00 per year. I’m at week 8. I’m type 1a with a fibro scan of only 1 & the reason I was denied is because the fibrosis needed to be above 3.
    Please talk to the person who handles your insurance. They should be able to help.

  • Poll