Who is More Deserving?

Nobody. That would be a natural response by most measures, and people, and it is mine too. This is the kind of thing I see in response to HCV care and treatment access. It is counter-intuitive to me that we have such curative therapies in the area of treating and curing people but we ration them and suggest that people must first have advanced liver disease before we can make them available. I am not so naïve to suggest that we can expect justice in an unjust world like the one we live in, but this is what I see again and again.

The arguments about the price of treatment rages on, with all manors of justification flying around, but to those people who are diagnosed with an illness like hep C, they simply want to be rid of it, and so did I. Try explaining to someone drowning that you can’t throw them a rope when they are nearly drowned, but only when they are gasping for their last breath.

This is a bit dramatic for some tastes I understand, but I talk to a lot of people who feel abandoned and some who feel forsaken and only by virtue of their illness. Sad realities for far too many, and I cannot frame it in a happy way.

Too bleak an outlook? Any who know my writing or me will know that I am all in when it comes to hope, and without hope we are lost out of the gate.

The facts can be brutal and realities harsh, but that is not ever to suggest that we should give up. If we are to get the care and access to treatment we deserve we can’t give up or give in to people who say no. That is not to say that just because we want something we should have it. This is not a realistic approach as we all learned as children. Be tenacious when they say no, as this may be the fight of your life. It is worth fighting for.

Back to who is more deserving and I stick to my first assertion that nobody is. I firmly believe we have been convinced that we should feel lucky if we do get the care we need. This is such a strange thing to me in that it is something grown out of a belief that wealth or privilege should be the greatest criteria for accessing things like care or treatment for a life threatening disease. We are after all not talking about country club membership or snazzy cars and boats, but life and death/quality of life issues.

Is it likely to change I wonder sometimes, as I like to wonder about things like this. Not if we don’t settle for this as the standard way of doing business. It rests in our hands for the future, and it is my own hope that we can change the paradigm, the status quo.

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