You

Welcome to the Club

Well you are certainly in good company. I mean, you probably don’t want to be part of our group. Not that we don’t want you in. I’m saying this all wrong. What I mean to say is if you are reading at this website then you are one of the millions of people who have The Hepatitis C Virus. And yes, you are in good company.

You may be wondering what sort of people have Hep C anyway? Well I’ve been part of the club for most of my adult life I suppose. Although I only found out that I had HCV five years ago, I’ve gotten acquainted with thousands of people who have the virus. I’ve only met a few of them in person. Most have become friends over the Internet through forums, blogs, or websites.

People who have the Hepatitis C Virus are all around you. They work at grocery stores and shoe stores, serve you in restaurants and service your car. Many have served their country, but most have fought the kind of battles that have nothing to do with the military.

There are those who have lived long enough with the silent killer that their liver has failed. No longer able to fulfill their passion through meaningful work, they are deemed disabled. They’re like wallflowers, earnestly waiting another turn around the dance floor. Don’t be fooled by the lethargy. With a keen eye on their future, they may be the most alert in the Hep C Club. I’m in that group. We cherish every minute.

Yes, the virus makes us aware of time. The time lost while wondering what is wrong with us, the time spent in the doctor’s office, the time we have left with loved ones. People with Hepatitis C spend their time doing what the rest of the world does: Waiting on a phone call, text, or mail. Looking to connect with someone, even if it’s a doctor with the latest lab result.

Most are victims of circumstances, but don’t call them a victim. With hearts full of laughter and wit, there’s more than a fair share of jokers in our crowd. What is it about illness that brings out joy? I guess it’s a love for life, and for each other.

In our crowd, there is a lot of love. They love the doctors who give them pills even while moaning about the side effects. They love to spend time with family and friends even when they feel bad. They try to make others smile just to let them know they care.

Some with Hep C have moved to the sidelines of life as medical problems engulfed them. Other’s are still tap dancing their way through their health crisis. They provide a bit of entertainment for those who don’t have the energy to dance.

Those of us with Hepatitis C are only human. I count myself as being privileged to have them as my best friends. Welcome to the club.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The HepatitisC.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

View Comments (12)
  • Ms. Patti
    4 years ago

    I have had hepC since the early 70’s. I contracted it from blood transfusions, without which, I would not be alive today at age 67. I has acute chronic hemorrhagic ulcerate colitis age 21 thru 29 when I had life saving surgery. Like most I am normal God loving, retired Registered Nurse, a wife of 35 years with 2 grow kids 2 grandchildren and 2 great grandchildren. Never used illegal IV,drugs, just happened to get a bad transfusion. Bad because of hep c, good because it kept me alive to have this great family! I just got the 3 mth lab results post Sovaldi and Ribavirin 12 wks. Neg. For the hep c. Don’t know if there is any liver damage yet, probably is after so many years, just have to be monitered.Had an ultrasound just showed fatty liver! Will wait and watch!

  • Karen Hoyt author
    4 years ago

    Ms. Patti,
    I love your attitude! It sounds like you have everything going your way with a SVR from the virus! As a health care professional, you do have an edge in understanding diet and nutrition. Congratulations!
    It seems as though you must have some good genes as well. To have had the virus so many years and no cirrhosis is a true blessing. Many happy years to you with your beautiful family.
    Much love,
    Karen

  • Ellen
    4 years ago

    Hi! Just joined the club. I have had hep c for 29 years now. Love this site and all the information it provides!

  • Karen Hoyt author
    4 years ago

    Ellen,
    I’m so glad you found this site. I’ve been writing about HCV for a few years now and am so happy to be associated with Hepatitisc.net. They are a covering all things hep c related! I am looking forward to seeing you around!
    Good luck in your journey.
    xo Karen:)

  • Barbarasholty
    4 years ago

    I flunked the first try on the pegasis and riborvirin in 2012. Now on the harvoni, praying it works! Going on the list for new liver transplant. Feeling blessed for my husbands good insurance! Still have no idea how I got this virus? No drug use or drinking problem? Did have 4 c-sections?

  • Karen Hoyt author
    4 years ago

    Barbara,
    Sorry to hear about the no response in 2012. The Harvoni has been really successful. I’m 3 weeks post transplant. Let me assure you that fear is part of it, but once you are rid of the virus, you can train and your body can heal so quickly.
    I always tell readers that we may never know for sure how we got the virus. But we’ll always be grateful to get rid of it! BTW – with good insurance, the transplant process can be less stressful too.
    I hope you and I will stay in touch. The transplant club is tight knit.xoxo Karen:)

  • Steve Polen
    4 years ago

    Hi I started Harmonic on march 7th.i am going for my lab work on the seventh of April. The doctor wants me to stay on the treatment for 24 weeks due to my cirrhosis.I don’t want to rattle on but I am glad I found this site. Thank you

  • Karen Hoyt author
    4 years ago

    Steve,
    The treatments have usually called for a longer duration for cirrhosis. I too had to go the long haul, but after 3 years of being Hepatitis C free, I can honestly say it was worth it.
    I’m glad you stopped by and hope that if you have any concerns, you will feel free to drop by!
    Thnx,
    Karen

  • Kelly McNamara moderator
    4 years ago

    Hi Steve. Thanks for the kind words and for being a part of our community! We’re very glad to hear the site is helpful and wish you the very best with treatment. Keep us updated with how your lab work goes. – Kelly (Community Manager, HepatitisC.net Team)

  • Jody Wheeler
    4 years ago

    Im fixing to start retreatment I took Sovaldi and
    Ribaviran before but this time it will be Sovaldi, Ribaviran and Interferon . Also before treatment Im getting a epidural steroid put in my lower back. Does all this sound ok to yall? Any advice or input?

  • Karen Hoyt author
    4 years ago

    Hello Jody,

    I’m so glad to see that you found HepatitisC.net. I’m sure your doctor has looked this over good regarding your epidural. One that that we have to watch is that all of our doctors are on the same page.
    It would be best if your back pain doctor and your hepatologist were aware of what each other were doing. I hope you are able to clear the virus once and for all dear friend.

    xo Karen:)

  • Kelly McNamara moderator
    4 years ago

    Hi Jody,

    Thanks for reaching out and being a part of our community! Here’s an article about Sovaldi, Ribavirin, and Interferon that might be worth checking out: https://hepatitisc.net/treatment/antiviral-therapy/.

    As per our community rules (https://hepatitisc.net/community-rules/), for questions regarding medical advice and treatment options, we always encourage members to reach out and talk over with a doctor or healthcare provider. We wish you the very best luck and keep us updated with how the treatments are going!

    Best,
    Kelly (Community Manager, HepatitisC.net Team)

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